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About EB-GLOBE
Explore the vision behind the global initiative and the community working together to advance knowledge.
→A Multi-National registry study for patients with Epidermolysis Bullosa
Global CollaborationReal Impact.
The EB-GLOBE Registry provides a secure, high quality global data collection to support the improvement of long-term outcomes for people living with EB.
PATIENTS · CLINICIANS · RESEARCHERS · ONE GLOBAL COMMUNITY
One platform · One purpose
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Data Entry
Secure access for authorised users to contribute, review and manage high-quality registry data.
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Resources & Documentation
Guides, training materials, study information and supporting documentation in one place.
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Support
Need assistance? Access practical help and contact the EB-GLOBE support team.
→GLOBALCOLLABORATION
SECUREDATA COLLECTION
REAL-WORLDEVIDENCE
TOGETHERFOR BETTER OUTCOMES